← Notes from Nici

what you've heard about adhd and autism, and what's actually true

the noise says adhd and autism are a trend. the 2026 review's data and real parent voices say something else. six myths, answered.

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the noise says it's a trend. the data and the parents say something else. here's myth by myth.

you've heard the noise. adhd and autism are "everywhere now." everyone's got a label. parents are chasing diagnoses. it's a fashion, a fad, a drain on stretched services.

then there's what the data says. and what parents actually live.

the 2026 government review into mental health, adhd and autism gives us the numbers. parents give us the reality. put them together and most of what you've heard falls apart.

here's myth by myth.

myth: it's a trend. everyone's got it now.

truth: how common adhd and autism actually are has barely moved. adhd sits around 5% in children, autism around 1 in 100 in adults. steady.

what exploded is recognition, and the queue behind it. children and young people waiting for an adhd assessment went from around 21,000 in april 2019 to around 270,000 by december 2025. thirteen times more, with the underlying rate flat.

one parent said it better than any statistic: "they were always there. the pressure of the system just doesn't allow for flexibility anymore."

myth: people just want a label. a diagnosis is a golden ticket.

truth: ask the parents who got one. a diagnosis isn't a prize. it's a permission slip to start a second fight. for an ehcp, for funding, for a specialist place that often doesn't exist.

"finally getting a diagnosis after six years of unsupported learning is not a golden ticket."

"got the funding, everything in place, then they made his ta redundant. she was the only one who could get him into school. back to square one."

nobody games a system to win that.

myth: it's really just poor behaviour. poor parenting.

truth: this one deserves a straight answer, because some parents and teachers say it and mean it.

screening already turns children away. teachers in these very conversations describe referring children who then don't meet the criteria. and the review found how common these conditions actually are has stayed stable, even as more children are pushed forward. so the system isn't handing out labels.

the deeper problem is the one underneath. support is locked behind a diagnosis at all.

"the support should be available without one. all it is is a few words on a piece of paper telling parents what most of them already knew."

myth: this wasn't a thing in the 80s.

truth: it was. it just had no name, no assessment, no record and no support.

a child struggling in 1985 didn't appear on a waiting list, because there was no waiting list to appear on. absence of a diagnosis was never absence of need. it was absence of recognition.

we are not seeing more neurodivergent people. we are finally seeing the ones we always missed. mostly women. mostly adults. self-reported autism rose by over 180% between 2018 and 2025, and adhd diagnoses in women aged 20 to 24 more than doubled. not new conditions. old blind spots.

myth: if the wait's too long, just go private.

truth: nhs waits are quoted at four to five years in some areas. so families who can pay, do. and that quietly sorts children by their parents' income.

"we went private in the end. it means a chasm between us and children from less well off families."

a diagnosis shouldn't depend on a bank balance. right now, increasingly, it does.

myth: half of it is people online talking themselves into it.

truth: the evidence points the other way. people who self-identify as neurodivergent were found to have higher unmet needs than those with a formal diagnosis, not lower.

self-recognition isn't a costume. for most people it's the first accurate thing they've understood about themselves, often after decades of being missed.

what it all comes down to

the numbers didn't change. our recognition of ourselves did. and the support hasn't followed.

that leaves a gap. between seeing yourself, and being held. and right now a lot of people, adults and children, are sitting in it. waiting. holding a new understanding of themselves with nowhere to take it.

you don't need a finished assessment to be understood by people who already live it. you don't need to reach the front of a five year queue to stop being alone in it. that's the whole reason loop breakers exists. for the people in the middle of this picture, led by lived experience, not despite it.

the myths make it sound like too many people are being seen. the truth is the opposite. most are still waiting to be.


source: independent review into mental health conditions, adhd and autism: interim report, published 10 june 2026. parent voices are real, gathered from the community, and used anonymised.

notice

sunday, 8am. two minutes. something i noticed in a classroom, the number underneath it, and one line you can use in monday’s slt meeting. written for people who don’t have time to read it twice.